James Malkasian

Challenges Of Living With Locked-In Syndrome James Malkasian

The book is an eye-opener to the services around us and how the author has been treated and the immense hoops her family have been put through. The locked-in syndrome (LIS) describes patients who are awake and conscious but severely deafferented leaving the patient in a state of almost complete immobility and loss of verbal communication. When you don't have a disability you take things for granted, getting out of bed, using the bathroom... The author put those things into perspective, and the difficulties you face when you suddenly become disabled.
A beautifully written, eye-opening book, into the life of a strong Mum and woman. An insight into the mind of a lady that has been through so much treated badly at times, but has come through and had her amazing father at her side.